“Most people think of palliative care as end-of-life care,
and it can be, but in the pediatric population is also about how to enhance
their days,” says Julie M. Hauer, M.D.
Since becoming Medical Director in 2011, Dr. Hauer has
conducted staff workshops to strengthen identification of pain and
discomfort. This has resulted in symptom
improvement, increased awareness and reduced spasticity in at least a third of
residents, she said.
“Dr. Hauer’s knowledge in this developing field has improved
quality of life for our residents, who have profound impairment and complex
medical needs,” said Holly Jarek, Vice President and Executive Director of the
long term care facility.
“Today we have a better understanding of how to manage the
degree of distress an individual is experiencing,” said Dr. Hauer. “We try to integrate symptom alleviation into
treatment options.”
Families sometimes face difficult decisions about surgery or
painful treatment options for their child.
Dr. Hauer makes it a priority to be available to address questions and
concerns. She discusses benefits and
risks from a palliative perspective, so they can make informed choices that
provide the best possible life for their child.
“There are limits to what medicine can do,” the medical director
said. “My goal is to help these children
have quality days.”Dr. Hauer’s credentials include two years as a primary care pediatrician, 14 years treating children with neurological impairment at Gillette Children’s Specialty Healthcare in Minnesota, and later directing its pediatric palliative care program.
She currently holds a faculty appointment in the division of
general pediatrics at Boston Children’s Hospital where she also completed a
fellowship in pediatric palliative care. As medical director she is responsible
for the health of 83 residents.
Visit www.sevenhills.org/affiliates/pediatric-center to
learn more about the center.